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spoon theory

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Cancelled Plans and Spoons

by Heather Loeb

I’ve had to cancel plans with three different friends this week. I HATE cancelling plans — it makes me feel so guilty, because I feel like I’m letting my loved ones down. I know I can’t help it — and my friends are very understanding — but I still feel guilty and less of a friend.

At least now I can tell them the truth — I’m too depressed to leave the house. Before I went to The Menninger Clinic, I didn’t tell the truth, and I probably seemed like such a flake who didn’t care about spending time with her friends. But now, I’m honest. I said that I was having intrusive thoughts about suicide (not suicidal thoughts per se) and I just didn’t have the energy. I call it survival mode. You see, I’m getting an ECT treatment on Friday, so I just have to make it until then. The ECT should reset my stupid brain and maybe I won’t be so depressed and fatigued. I’m hoping that I won’t have as many migraines after this treatment, too. For some reason, my migraines have ramped up the past few weeks, and it’s been really annoying. I hate being limited by my illnesses, and on that note, I’m reminded of an article I read about the Spoon Theory by Christine Miserandino, who suffers with lupus. She writes about the physical and mental toll an invisible, chronic illness can take. And I relate.

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While describing what it’s like to have a chronic illness, Miserandino grabbed spoons and used them to represent finite units of energy. Healthline.com writes this of Miserandino’s theory, “Energy, for many of us with chronic illness, is limited and depends on many factors including stress levels, how we’re sleeping, and pain. Miserandino then walked her friend through the friend’s normal day, taking spoons, or energy, away from the friend as the discussion went on. By the end of the day, her friend wasn’t able to do as much as she wanted. When she realized Miserandino went through this every single day, her friend started crying. She understood, then, how precious time was for people like Miserandino, and how few ‘spoons’ she had the luxury of spending.”

I feel this in my soul. Especially right now. I have to save every waking minute in order to do what is absolutely necessary, what I deem necessary, at least. This includes taking care of the kids and all their needs. This, to me, comes first. My remaining energy, if you can call it that, goes to taking care of myself. Many people would argue that it should be reversed, and I don’t totally disagree, but this is how it is right now. I hope to change it, because I know you can’t pour from an empty cup, and if I don’t start taking better care of myself, my cup will stay empty. I’m working on that, too.

It dawned on me this week that I could probably space out the ECTs more if I just put in the hard work of self care. I don’t mean getting a massage every week, although that would be nice right now, but I mean taking my medicine as I should, taking breaks and eating healthier. And actually sitting and exploring my emotions instead of burying them then stuffing my face. That happens a lot, almost every day. I also would like to increase my therapy sessions to twice a week — I have a lot to do, lol.

That’s OK though. I’m worth the work; I just need to remember that every single day.

Thank you to my friends who were so gracious about me. cancelling on them. I love y’all and appreciate your support.

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