Retrograde Amnesia

As many of you know, I have retrograde amnesia, caused by the many ECT treatments I’ve had to do in order to obtain relief from my depression. For the record, I must have these treatments — my depression is treatment resistant, meaning that most medications can’t help alleviate my symptoms. Not much does except the ECTs, which I started in 2019.

During a treatment, I’m anesthetized and electric currents are sent through electrodes that are placed on my forehead, inducing a seizure. It’s not known exactly how the treatments help; I’ve always looked at it as a hard reset of my stubborn brain.

I would be lying if I said I don’t mind the treatments — I actually hate them, because over time I’ve developed a phobia of the anesthesia. And it’s definitely bothersome that I can’t remember some things. My memory loss goes back years, decades even, and it’s very hard to retain information even now. It’s also pretty embarrassing. I’ve forgotten who some people are, their names and how I know them. And when I say I have amnesia, I’m met with blank stares. And then I have to explain ECTs, which sounds unbelievable if you’re not used to it.

When I do try to recall something, I see only a gray wall where the memory once resided. Things aren’t just fuzzy — they’re just not there most of the time.

This must sound awful, but there is one good thing about my memory loss: the memory loss.

That’s not a typo.

I’ve suffered for decades with major depressive disorder, an anxiety disorder and a personality disorder and it’s unbelievably painful. But, just like I can’t remember who I ran into at the grocery store last week, I also can’t remember the most painful, darkest moments of my depression. I only know about it from my husband’s or best friend’s account of it. Or previous blogs.

Even with the ECT treatments, I still suffer with depression, just on a much lighter scale. I’m glad I can’t remember every time I couldn’t get out of bed or every time the pain was so deep that I wanted to end my life. Because if I sit and dwell on just how bad it was or can be, then I might forget that I do want to live — and live happily.

I don’t know if that makes much sense, but I do know that I (likely) will be struggling with depression and anxiety for the rest of my life. That thought alone makes me sad, and I can see how that thought can make me — and others — lose their faith in life and just put their suffering to an end. Mental illness can be so lonely when you’re in such pain all the time. And people still don’t understand it; the stigma of having a mental disorder is still there, too. So, if you do know someone who struggles, please be more understanding and empathetic. It’s just so lonely.

Even if I have to go under anesthesia and have electric currents sent through my brain every eight weeks, it’s not so bad. Not compared to the reality I was living without the treatments.

I just have to remember to take notes anytime I’m awake.

Self Destruct Mode: OFF

I’ve been feeling pretty great lately, which is a bit unusual, but hey, I’ll certainly take it. When I feel this good I tend to treat myself better, I’m more productive and generally in a good mood.

But I’ve noticed, even with these good moods, there’s still a part, albeit a small part, of me that looks for ways to be unhealthy. For example, I’ll get the urge to overeat, even when I’m not hungry. I’ll think, “What pills can I take to feel good?” even though I have no such pills. Images of cutting myself will appear, even though I surely don’t want to do that.

I’m aware that it’s happening and I know it’s 100-percent my lying ass brain spreading more lies. It’s just a malfunction. It’s not really real, but emotions are energy in motion, and I can’t let these awful thoughts fester in my head.

If I do, unhealthy behaviors take control and with them come intrusive, unhealthy thoughts. My control over these thoughts and behaviors loosens, and just like that, I’m in a dark, ugly place that I can’t find my way out of. It’s like being in a deep hole and my depression is just too heavy, weighing me down and preventing me from climbing out.

It’s a slippery slope, a dangerous one for me, given that I can become suicidal very quickly.

I have to take inventory of my emotions constantly to prevent this. I have to be fully aware of how I feel and avoid switching to autopilot where I might miss something. I have to be so diligent so I can avoid that hole. And honestly, it’s exhausting and feels like sometimes it’s too much or not worth doing. Before I’d try to figure out why I was having these thoughts and ask what it meant, but like I said, it’s just a malfunction. I need to stop wasting time wondering why and just dismiss the thoughts. They’re not worth thinking.

I must release the energy that fuels these damaging thoughts and refocus if in a productive way, channeling it into exercise and writing, etc.

A self care check list is helpful to have so I can stay on top of the things I need to do to prevent self destruction. Just thinking about all the work I have to do to stay healthy is daunting and tiring. But I have to do it if I want to be happy. This past week has made me realize how much I’ve missed being happy — singing at the top of my lungs in the car and shower, truly enjoying spending time with my kids, reading for pleasure, writing my ass off and exercising. Medicine, ECT and therapy just aren’t enough to maintain my good mood and healthy behaviors. I have to put in the work at it, just like anything else. Sometimes it bothers me that other people don’t have to work as hard at life.

But I don’t do happy-go-lucky — I physically can’t. Happiness, for me, is hard work. It’s sticking to a strict schedule, taking an assortment of pills daily, going to therapy, keeping a close eye on my emotions and lots of prayerThere’s nothing lucky about it. 

I do have to work hard, but the payout is so, so good and that’s what I need to remember. What is the point in having an amazing life if you can’t enjoy it? Why do I spend so much time self-sabotaging? Again, with the “why?”

I’m going to work at my life like it’s my damn job and like it pays, because it is and it does.

It pays so much.

This is the Self Care Checklist that I created. It’s super simple; feel free to download:

Real Me vs. Depressed Me

This past two weeks have been amazing. My demeanor has changed. My mood has lifted. And I’m able to do things that were near impossible before. The ECT treatment I had two weeks ago must have been a good one. I’ve seen a glimpse of my authentic self, who wants so badly to be set free from wherever she goes when a depressive episode hits. Before this past ECT, I was suicidal. I was unbelievably sad and anxious. I thought I was doing OK but I can see now that I wasn’t.

I didn’t recognize this feeling of joy and happiness, and I can’t tell you the last time I felt it either. I’m more familiar with “Depressed Me,” a slower, sadder, less efficient version of me, riddled with depression symptoms, who seems to be the reigning champion of my brain. But now that I am feeling happy and I see the “Real Me,” I’m going to fight tooth and nail for it. I refuse to go down without a fight. How I’m feeling and what I’m able to do right now — that’s worth fighting for.

In the mornings, I don’t immediately feel weighed down and already exhausted before even starting my day. I have energy and am excited about the day. The chores and tasks I absolutely have to get done don’t seem so taxing and annoying. Showering is now relaxing and not a daunting chore I’d put off for days (yes, days!). I don’t feel the need to stuff with my face with food that I don’t want or need, which is a battle for most everyone. I’m more cheerful and attentive to my kids. The Real Me is kind of a badass.

I could name so many more examples. I don’t know if it was the last ECT. I don’t know if it was a new medication I started the same day as my last ECT. I don’t know how long this will last, but again, I gotta make hay while the sun shines. And I have to fight.

Fighting looks like me not solely depending on my medication and ECT treatments. It means exercising, going to bed early, eating healthily, keeping a strict routine and reaching out the minute I feel like things are slipping. It sounds like a lot, or maybe it doesn’t, but I’m done with my rebellious, depressed part of me that refuses to comply with even the simplest of instructions.

When I’m not handicapped by severe depression, I’m so powerful. I radiate love and happiness. My writing flows onto paper, because my words are powerful, too. I utilize my limitless ability to care for my loved ones. I’m able to reach my full potential, instead of being a shadow or fraction of my true self. Like the phoenix, I am rising and there’s not a whole lot that can stop me.

Here are some examples of what the Real Me versus the Depressed Me are like:

The Real Me exercises, reaches out to friends, eats healthy foods, writes/blogs, goes outside, puts the TV remote down, reads for pleasure, sings all day (to the point where her family complains), cooks, bakes, showers, brushes her teeth, laughs loudly, plays with her kids even more, styles her hair, gets massages (or goes to any self-care appointment).

Depressed Me sleeps more, watches TV until having to get the kids, endlessly scrolls social media, gets in bed until she absolutely has to move, doesn’t shower, blows off doctors appointments, gives into sadness/anxiety, doesn’t smile as much, has a short fuse, is impatient and more.

Depressed Me goes to sleep at night because she can’t stand to be awake one second longer than she has to. She’s judgmental and mean about her appearance and body.

The Real Me looks forward to the future but enjoys the present.

I’m certainly enjoying right now, and although I’m cautious about the future, my outlook is finally optimistic.

As I’m writing this, I’m hoping that you don’t get the wrong idea about Depressed Me. While I would love not to experience depression and anxiety, I respect Depressed Me. She fights hard and doesn’t give into her suicidal thoughts. She’s a fighter. She’s scrappy. She has grit, and without her efforts, the Real Me wouldn’t appreciate what it’s like to be happy.

For that, I’m grateful.

To learn more about major depression and signs of depression, visit the National Alliance on Mental Illness website.

If you or a loved one is experiencing suicidal thoughts, please call the Suicide Prevention Lifeline at 1-800-273-8255 or visit the website here.

My bad

I have been remiss in updating my blog since I returned from the good ol’ mental hospital, so my apologies. The hospital actually helped me quite a bit. I was there for 6 weeks, which was terrible in terms of being away from my family, but I was able to get help for my depression, anxiety and my tendency to over medicate. I left with a brand new diagnosis, too, so that’s fun. Turns out I have Avoidant Personality Disorder, along with depression, dysthmia and generalized anxiety disorder. I also started up ECT treatments while I was there, which I am continuing now. It’s not as scary as it sounds – I know a lot of people think negatively about “shock therapy” – they seem to be working, for the most part. The only sucky part is that I have to drive two hours away to get the treatments, as Corpus Christi doesn’t have a place here to do it.

Things were going really well but honestly right now I am on the struggle bus. Even though I’ve been compliant with meds and going to therapy, my depression has returned as has my binge eating disorder. I got a lot of problems, right? Feels like it. I’ve gained a lot of weight in a very short amount of time and even as I write this blog, I am miserably overfull from a binge.

I plan on calling a nutritionist and upping my therapy appointments, among other healthy ideas but it’s really hard not to feel bad about myself right now. Bad that I am so depressed and not a lot seems to help it. Bad that I’ve gained weight and feel so horrible. Bad that I’m not the best example for my kids. I’m trying to pull myself out of this funk, but it’s so hard. It’s getting really hard to take care of myself, at least in the healthy way I learned about in the hospital. OK, so now that I’m typing all this it doesn’t seem like the ECT and new meds are helping. Sigh.

Even with all this crap going on, I still feel hopeful that I can get back on track and live a healthy and happy life. At least my hope isn’t gone. I have my friends and family to think for that – they all have provided me with more support than I ever could have imagined. I’m a lucky girl. And of course, my beautiful children keep me going.

So, I can beat this. I will. I’ll feel better soon. It wouldn’t hurt for y’all to pray for me, though. I’ll take whatever I can get.

Thanks for reading, and thanks for sticking around through all my mess. Much love.