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Heather Loeb

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I’m proud of myself this week. I had to move up my ECT (to this past Friday) because I quickly became depressed after the last one, which was four weeks ago. I hate getting them, but I knew I needed it. I went into survival mode last week (and had to cancel plans) and made it to Friday.

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I was more nervous about this one, but I don’t know why. When we got to Laurel Ridge, I started pacing in the waiting room. Luckily, there was only one girl ahead of me, so I didn’t wait long. But when a bed was available, the nurses couldn’t get my IV in. This made me incredibly nervous. I was afraid that they would do a bad job with the IV, then I wouldn’t get all the anesthesia I needed. I know that’s not likely, but that was the thought racing around my head. One of my favorite nurses finally got it, but to be honest I had shed some nervous tears. I tried to chat about my kids to take the focus off, and it helped.

When I went into the room, everyone was really nice and accommodating because of my anxiety and I had a good seizure — 72 seconds long. I was told the shorter the seizure, the better, but looking at my records, all my seizures are kinda long, over a minute. One was two minutes long — after that seizure, I was doing very well and was able to go nine weeks without an ECT. So, who knows. I am keeping a notebook where I’m documenting my symptoms a week leading up to an ECT and immediately after. I think it would be helpful to find patterns or correlations.

Enough about that. My birthday is this coming Saturday, so I’m looking forward to that.

That’s really all I got for now. Y’all have a good week, and stay in the light.

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Cancelled Plans and Spoons

by Heather Loeb

I’ve had to cancel plans with three different friends this week. I HATE cancelling plans — it makes me feel so guilty, because I feel like I’m letting my loved ones down. I know I can’t help it — and my friends are very understanding — but I still feel guilty and less of a friend.

At least now I can tell them the truth — I’m too depressed to leave the house. Before I went to The Menninger Clinic, I didn’t tell the truth, and I probably seemed like such a flake who didn’t care about spending time with her friends. But now, I’m honest. I said that I was having intrusive thoughts about suicide (not suicidal thoughts per se) and I just didn’t have the energy. I call it survival mode. You see, I’m getting an ECT treatment on Friday, so I just have to make it until then. The ECT should reset my stupid brain and maybe I won’t be so depressed and fatigued. I’m hoping that I won’t have as many migraines after this treatment, too. For some reason, my migraines have ramped up the past few weeks, and it’s been really annoying. I hate being limited by my illnesses, and on that note, I’m reminded of an article I read about the Spoon Theory by Christine Miserandino, who suffers with lupus. She writes about the physical and mental toll an invisible, chronic illness can take. And I relate.

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While describing what it’s like to have a chronic illness, Miserandino grabbed spoons and used them to represent finite units of energy. Healthline.com writes this of Miserandino’s theory, “Energy, for many of us with chronic illness, is limited and depends on many factors including stress levels, how we’re sleeping, and pain. Miserandino then walked her friend through the friend’s normal day, taking spoons, or energy, away from the friend as the discussion went on. By the end of the day, her friend wasn’t able to do as much as she wanted. When she realized Miserandino went through this every single day, her friend started crying. She understood, then, how precious time was for people like Miserandino, and how few ‘spoons’ she had the luxury of spending.”

I feel this in my soul. Especially right now. I have to save every waking minute in order to do what is absolutely necessary, what I deem necessary, at least. This includes taking care of the kids and all their needs. This, to me, comes first. My remaining energy, if you can call it that, goes to taking care of myself. Many people would argue that it should be reversed, and I don’t totally disagree, but this is how it is right now. I hope to change it, because I know you can’t pour from an empty cup, and if I don’t start taking better care of myself, my cup will stay empty. I’m working on that, too.

It dawned on me this week that I could probably space out the ECTs more if I just put in the hard work of self care. I don’t mean getting a massage every week, although that would be nice right now, but I mean taking my medicine as I should, taking breaks and eating healthier. And actually sitting and exploring my emotions instead of burying them then stuffing my face. That happens a lot, almost every day. I also would like to increase my therapy sessions to twice a week — I have a lot to do, lol.

That’s OK though. I’m worth the work; I just need to remember that every single day.

Thank you to my friends who were so gracious about me. cancelling on them. I love y’all and appreciate your support.

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  1. It feels like you’re dying — When I get a migraine, I have awful throbbing pain about my right eye that wraps around my head and sometimes goes down my neck. I get dizzy, sometimes I can’t see that well out of my right eye. I throw up. And sometimes my abortive meds fail and there’s nothing I can do except wait for my neurologist to call me back with ideas. It’s scary when I can’t manage my migraines, so I deal with fear and panic on top of the physical symptoms.
  2. People think I’m faking — Like with other invisible illnesses, people assume you’re faking and have no sympathy whatsoever.
  3. Doctors and other medical staff have thought I seeking drugs when going to the ER — When my abortive meds fail, I can’t get a hold of my doctor and the pain is severe, I have to go to the ER for treatment. I have been accused of trying to score drugs. Once, I went to the ER and I told the doctor I couldn’t have NSAIDs, which is true, so the doctor goes, “OK, so you’re here for narcotics, then?” It was embarrassing and frustrating, because I was in so much pain.
  4. I cancel a lot of plans with friends — Migraines spring up fast, and while my meds work quickly most times, I still don’t feel well enough to hang out or go anywhere. I’ve had to cancel on my friends a lot, and I know it hurts their feelings and makes them feel like I don’t want to be friends. Most of my friends now get it, though.
  5. I missed a lot of work (when I did work outside the home) — When I was working, I had to call out sick A LOT. Like I said, migraines can come on quickly and my meds don’t always work. Sometimes, the migraines last for days (called an intractable migraine). Not only did it piss my bosses off, it made my co-workers resent my absences because they had to pick up the slack. And if you can’t see the illness manifest physically, it’s hard for some to understand.
  6. The medicine is sometimes worse than the migraine — Right now, I take Imitrex when I start to feel a migraine coming on. Sometimes, it works with little side effects and others it’s just as bad as the migraine itself. It feels like my brain is leaking down the back of my head and neck. It makes me nauseated and very fatigued. I don’t know why I feel such severe side effects at times and not others. It’s frustrating, but I’m going to try a new medicine called Ubrelvy.
  7. I can’t wear my hair in a pony tail or put anything on my head –– This is not a huge deal, but when I have a migraine, I can’t wear my hair up or wear a buff (to help dry my curls) or have anything touching my head at all. My scalp is so sensitive that even water in the shower can hurt.
  8. I can’t sing — This might seem odd, but I love to sing. I sing all day long, which seems to really aggravate my kids. But when I’m sick with a migraine, it hurts so badly to sing, which makes me hard for me to put Eli to bed because he requests lots of songs. If I try to sing, the throbbing becomes way worse.
  9. I can’t always be there for my kids — Sometimes, I’m just down and out. I can’t get out of bed, which leaves my husband to pick up the slack. I hate not being able to play with them or spend time with them, especially because they don’t always understand why I can’t. It’s hard, and I have a lot of guilt about it, but it is what it is.
  10. I get migraine “hangovers” the next day — After a migraine, I feel like crap. I’m very fatigued, I can be irritable and each of my limbs feels like it weighs 700 pounds. Sometimes, my brain feels foggy, too.
  11. The medicine can be expensive — The new medicine that I’m going to start costs $1,000 per month. That’s not a typo. I have a savings card, but I’m not sure how much that will actually knock down the price. The thing about this drug is that there are no side effects — I was able to try some samples a couple months ago and I didn’t experience a single side effect and it worked quickly. I’m looking forward to using them, and hopefully, the savings card will help a lot.

If you suffer from chronic migraine, that means you can have 15 or more migraines in a month. That’s a lot of pain and time missed with family and friends. It’s not fun. Thankfully, after I had kids my migraines got a little better but they can still wreak havoc on my life. And one thing I didn’t mention — and probably the most important — is that having so many migraines adversely affects my mental health, and so many people don’t think they are related.

If you know someone struggling with migraines, ask how you can help and don’t ever judge!

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Imaginary Brakes

by Heather Loeb

Sometimes my anxiety runs rampant. I catch myself moving my foot as if I’m slamming the brakes in a car. I guess I want time to come to a screeching halt, as if I’m in the driver’s seat. But I’m not. It’s the out of control feeling I can’t stand. And though I have anxiety every day, Sundays are the worst, as documented here.

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I’ve always hated Sundays from the time I was little, I guess because I NEVER wanted to go to school, especially on Mondays. I used to get a feeling of dread when I got older, too when I had a full-time job. The Sunday Night Blues or Case of the Sundays was always present, no matter what age or circumstance I faced.

And today, even though I don’t work outside the home, I feel it. The threat of responsibility looming is just too much to take and I feel the tightness in my chest and butterflies in my belly. It makes no sense to me — I don’t have anything unusual happening this week, nothing to be all doom and gloom about. But it’s there. At least, it’s consistent.

I try really hard to have a “countdown” methodology about anything — like countdown to Christmas, to the weekend, to my birthday, etc. So, as much as I’d like to look ahead to Valentine’s or my birthday, I need to be here, now. I look ahead at this week’s events, but that’s as much as I’ll let myself look.

It may sound silly, but as depressed as I am and how often, I get wrapped up in looking ahead and squander the perfectly good time I already have. I don’t want that. I don’t know how much time I have where I’m lucid and not depressed. I need to make hay when the sun shines, as my daddy says.

I still feel a nagging feeling in my belly, and I realize that I have an ECT treatment Friday. I wasn’t supposed to have it until March 5, but last week I felt the all-too-familiar signs of a depressive episode, so I moved my appointment up to stop it in its tracks. And even though I know it will make me better, I still get anxious and scared. Even though the past couple treatments have been pleasant. Even though…

Just thinking about it, I have a white-hot feeling pass from my head to my toes. It’s adrenaline, I think. And fear. I feel my foot try and stomp on the imaginary brakes and start to sweat.

Ugh, I’m not a stupid person. I should be able to address my fear and anxiety with the logic that I mentioned. Tears are threatening. I’m scared.

But come Friday, I will joke with the nurses. I will ask my favorite nurse to hold my hand while they put me under anesthesia. I will wake up 15 to 20 minutes later, not even knowing whether I’ve had the treatment. I’ll irritate David by (unknowingly) asking him the same questions over and over on the way home. I’ll get Chick Fil A on the two-hour drive and fall asleep until we reach home. I will be a better version of myself, a more patient and loving one. I’ll be free (for now) of self hatred and self judgement. And if that’s not the case, I’ll go back weeks later and repeat the same thing, always hoping to get the best version of Heather I can get, born out of fear and an induced seizure.

Whatever version, I know it will be a pretty perfect version of myself….just with amnesia and neurons that are unruly af. And hey, maybe the Sunday Night Blues will disappear for awhile. But I won’t countdown until they do. That, I refuse.

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As previously mentioned, I’ve been stressed this week. Yesterday, Isla had her stage 2 gifted/talented test, the final test she’ll have to take. We don’t get the results for another two weeks, because the district has to rank the tests, and then they’ll take the top six-percent of kids. She was way more confident this go-round, so I’m sure she did great and will get in. But if she doesn’t, that’s OK, too.

I made Eli an eye appointment with a pediatric eye specialist because of his wayward eye, but he can’t get into until April. So, I may not have immediately answers for either of my big worries right now, but I guess I’ll live.

Last week, I also got sick and have been feeling like hell. I went to get tested for COVID-19 but was negative, thank God. Still doesn’t change the fact that I feel terrible. I could use the rest this week anyway.

I’m looking forward to Valentine’s Weekend, even though we don’t have anything planned, then the following weekend is my birthday. We don’t have plans for that either, but that’s just fine by me.

I hope this week is a better one. I hope you guys are doing well and staying in the light. Take care this week.

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I’ve been thinking so much about Isla’s gifted/talented test this Saturday. It makes me think of my own education. When I was younger, I was in the G/T program in the third grade at Carrollton Elementary, but when I switched schools to Good Elementary, I was taken out of the G/T classes. I didn’t think much of it until middle school, when the powers that be placed me in remedial English for the seventh grade. I felt insulted, and it was my first inkling that I didn’t test well.

In high school, I made As and Bs, and even some Cs. I absent-failed every year. I bombed the PSATs so badly, that I was too scared to take the real test, instead opting for the ACT, which I did OK on.

As far as Isla goes, I think she’ll probably do well tomorrow. She’ll go into the G/T program and she’ll do great, because she’s bright, caring and unique. But if she doesn’t get in, I’ll remind myself that as far as test scores go, I am neither gifted nor talented. But I am exceptional, regardless. I’d like to avoid the “…but I did OK” cliche, because that’s not what I’m trying to say. I guess I did do “OK,” but only because of a handful of teachers that made me feel gifted and encouraged me. These teachers and mentors are the real heroes in my story, along with my mother, who always encouraged me to read. One cannot write well and not read.

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Mr. Dycus, Chris and me

These teachers/mentors did not have to take time to give me encouragement, but I’d like to believe that they saw something special in me, something not detectable by those stupid tests. One such teacher was Ms. Jackie Morgan, who taught ninth grade English. I remember at a parent/teacher conference, she told my mother I had a real writer’s voice, and she’d be surprised if I didn’t become one. When she said that to my mother, my ears perked up, and a light turned on inside of me. At that time, I had wanted to be a copy editor at a publishing house, never thinking I could actually write myself. Ms. Morgan planted that seed and help nurture it. Writing is what helped me get through the rest of high school.

When I started college at the University of Texas at Arlington, I was accepted as a writer for the college’s magazine, Renegade. There was a small team of writers and editors, as well as a staff member. I didn’t get a lot of guidance on the pieces I wrote there, and when I made a huge mistake (rather, mistakes) in one issue, I was degraded and humiliated by the staff advisor. I wasn’t asked to come back to write for the magazine, and I was so hurt. I thought my dream of writing was over, until I applied to be a reporter with the college newspaper. When I turned my application in, I was in fear that I would run into that staff member who had been so mean to me, but I didn’t. I was told later by the wonderful person who hired me (hi, Melissa!) that the staff member tried to dissuade her from hiring me, but she went with her gut. Thank God.

As a learned the ropes of being a journalist, it was like I had found what I was meant to do with my life — and I was good at it! But this didn’t just happen overnight. I was encouraged by the staff advisor, Chris, and another advisor, Mr. John Dycus. Both men told me that journalism is where I needed to be. They believed in me, and I will forever be grateful for their kindness and praise.

And years later, when journalism didn’t pan out, Mr. Dycus told me to keep writing. He told me to keep believing in myself. He has continued to be supportive — no matter what I’ve done — to this day. He is without a doubt one of my favorite human beings, the nicest man that ever lived, and when he gives you praise, you feel like you are the only one on Earth who can do what you do. I love him, and I’ll admit, he still edits my writing. And I’m better because of it.

But I digress. No, Heather Ann White Loeb doesn’t look great on paper. My grades and test scores were meh. My journalism career never took off. Who cares? I still do great things. Things, I’m proud of every day.

And if Isla doesn’t make it into the G/T program, I pray that she’ll find her a Ms. Morgan and Mr. Dycus — mentors who help you believe you can fly and that you look real damn good doing it.

I know my Isla will be fine. If you are so inclined, please pray for her tomorrow as she takes the test — not necessarily that she gets in, but is calm and does her best. I’ll be praying for all those sweet Kindergarteners.

Thanks for reading.

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My Eye’s on Eli’s Eye

by Heather Loeb

When I was little, around 3 years old, my parents noticed that one of my eyes drifted outwardly — like a “lazy eye.” I had to wear patches on my eye to try and strengthen the muscle, I think. And when that didn’t work, I had two surgeries to correct it. They’re still not straight and my scars are minor. Not a huge deal to me.

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Until I noticed that Eli’s eye drifted. It’s so slight, but I’ve been noticing it more and more. My mom commented on it as well, so I know I’m not “crazy.” Well, I am but not for this.

After my mom confirmed that she had noticed it too, I started to panic. Even though it’s barely noticeable and probably could be corrected by wearing patches, I was scared. I don’t want him to go through what I went through, especially the surgery. I started to think that Eli might have inherited more than the likelihood of a lazy eye, for instance my fucked up brain.

Wearing patches is one thing, but I desperately want him to avoid the migraines, major depression, anxiety, personality disorder and more. Logically, I know that him having a slight lazy eye doesn’t mean he’ll suffer my fate. But still, I worry.

He is, without question, my mini me. If you look at my school photos from when I was kid, it looks like Eli in a dress. There’s no denying our genetic connection. And I love that, but now it terrifies me, too.

It’s every parent’s wish that no harm befall their child, and adversity is supposed to make people stronger. It certainly has made me stronger, braver too. But oh my God…I’ve been through so much. I still go through so much just to try and live a somewhat “normal” life. Taking meds, going to weekly therapy appointments, doing electroconvulsive therapy (ECT) treatments — it takes a toll. Especially the ECT, where I literally have electric currents passing to my brain to induce a seizure. I talk about this a lot, I know, but it’s unbelievable to me at times that I have to go through extreme measures like that — just to be moderately depressed, not severely depressed. Just typing all that bums me out.

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But — epiphany! — I still live a good life. It’s been hard as hell, I won’t lie. I’ve been so depressed that I couldn’t take care of myself and I’ve been suicidal. I’ve contemplated ending my life so many times that the thought is not alarming as it should be. But still, I’m happy with my life, despite what my brain tells me at times. I have it so good — good friends, amazing husband, wonderful children and beautiful home. I’m proud of myself for fighting everyday, and I’m proud of the mental health advocate I’ve become.

So, here’s my point: I suppose even if Eli (or Isla) has to face some sort of adversity, he will likely emerge stronger, wiser. Like me. Just like me. Because I’ve been through hell and back, I can guide and support him.

It’s so hard to let go of the worry, but he’ll be OK. Isla will be OK — more than OK. I believe they are destined to do great things. But if they don’t I have to be OK with that, too. God it’s hard being a parent, lol.

All this rambling over a slight lazy eye, but this is where my brain goes. I just have to remember that IF there’s a chance Eli can inherit my disorders, then there’s also a chance he will inherit my resilience and grit, too.

After all, he is my mini me.

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Gifted and Talented

by Heather Loeb

I’d like to preface this post but saying that logically I know that things will work out the way they’re supposed to. I’m just stressed and venting.

Last month, my daughter, who is in Kindergarten, took a test to determine if she qualified for the school district’s gifted and talented program. All Kindergarteners can take the two-part test. The G/T school here is amazing and is always being recognized district and state wide. My husband went to that school when he was younger, as he is very gifted and a legit genius. It’s a great opportunity for my daughter.

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I have not been stressing about the test, because I just assumed she’d get in. She’s very bright, and her teachers agree that she is gifted and would benefit from the G/T program. It’s my husband who has no chill when it comes to the test. But now, I too have no chill.

Last week, we got the scores back from the first part of the test. Her scores qualify her to take the second part of the test, but they were lower than we and her teachers expected. She received 7 out of 15 points, which is in the 91st percentile.

My husband and I are definitely proud of her, but there was a nagging feeling inside of me — anxiety. Her friends scored much higher, and I know I’m not supposed to compare, but I started to freak out. The elementary school she would go to if she doesn’t get into the G/T program is not great. I started worrying that David and I didn’t do enough in preparing her for the test, even though her preschool is famous for preparing them. All this doubt clouded my mind.

I felt like a failure as a parent and that I was also letting my husband down for not helping our daughter more. I have to remember that my success as a parent isn’t contingent on whether she passed some test.

The thing is — I know my daughter is gifted. She’s gifted with the kindest heart — last year she collected toothbrushes and toothpaste for the local homeless shelter because she was worried that the homeless couldn’t afford to brush their teeth. She collected more than 1,000 toothbrushes. She also donated all her piggy bank money to her preschool after she heard my husband and I talk about raising money for a new building. She’s 6 years old. Her compassion and empathy for others is a true gift and is something that can never be quantified on a test. And I’m so proud of her for that.

There are so many other qualities that I’m proud of and none of that is diminished by her test scores. But I would be lying if I said I wouldn’t be disappointed if she didn’t get into the G/T program.

I have made a concerted effort to not talk about the test in front of her or put any pressure on her whatsoever. Because it is a lot of pressure! For parents, too. I remember years ago when one of my mom friends heard that her daughter didn’t make it into the G/T program. Her mom was crying she was so upset and in front of her daughter, no less. While I understand the sadness, I will not cry or show disappointment in front of Isla. My job is to prepare her as much as possible and support her as much as possible — whatever that may look like.

I obviously want what’s best for her, and even if I think this program is the best, it just might not be. And that’s OK. I celebrate her for her heart, compassion, kindness, intelligence, unconditional love for the Olive Garden, and so much more. It is a joy, and privilege, to watch her grow up.

And I will remember that even after we get the test scores.

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Buried Secrets

by Heather Loeb

I’ve lived with what I thought was a shameful secret for two decades. I buried it deep inside me, so deep I never thought I’d never have to deal with it again. But it turns out shameful secrets will come to surface no matter what.

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I binged for years, shoving food in my mouth trying to keep it down. I swallowed pill after pill trying to escape from the reality where that secret lived. I got tattoos and piercings, hoping that that pain would distract me from the pain inside me. The needles are nothing compared to emotional pain.

Alas, none of it worked.

It wasn’t long before I was diagnosed with major depressive disorder and anxiety. I kept my mouth shut about that, too until I could no longer hold it in because I was abusing my anxiety meds and it was too hard to get out of bed, despite my growing list of responsibilities. I ended up at a psychiatric facility, which confirmed that I had major depressive disorder, generalized anxiety disorder, binge eating disorder and avoidant personality disorder. It cost tens of thousands of dollars for me to stay there six week and get back on the straight and narrow. Or close enough, anyway.

And one day, after a binge session and tons of guilt, I started to think: maybe I’m bingeing because I’m punishing myself. Punishing myself for what happened to me. Punishing myself for never truly confronting my demons. Punishing myself for being a kid and not knowing any better. And that’s silly. Because I was just a kid. I didn’t know better. If the same had happened to one of my kids, I would never let them partake in the blame game, because it simply wouldn’t be true.

Maybe I should forgive myself for whatever role I thought I played. I should forgive myself. I forgive myself. I forgive myself. I forgive myself. It was not my fault. No matter what my brain tells me, it wasn’t my fault.

However, it is my fault if I don’t change my behavior and keep hurting myself to forget or escape. I am needed here, with my family, and hurting myself only hurts them. That’s my fault. It’s my fault if I don’t forgive myself. If I don’t do the work to forgive. I’ve spent two decades ignoring this bullshit, so I know it won’t happen overnight, but I can take the steps to forgive myself now. Starting today.

Starting now.

My life is so good. There’s no reason to escape it, through any means I might’ve relied on in the past. I need to be here now. I need to show myself love, because my kids are watching, and God do I want them to love the shit out of themselves. My way — my past ways — are no longer the way to go.

The thing about secrets is that they feed on shame. I was feeding it with my bingeing and abusing meds, but I don’t need to feed it anymore. I’m done feeling shame over it. At least I’m trying to be. I’m not giving this thing any more life than I have. It’s dying now. It will soon be dead.

If you have a buried secret, please forgive yourself. Love yourself. Do the work and work it out. Forgive yourself and live the life you are meant to live.

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Y’all. Last week was ROUGH, likely due to me confronting some past trauma and not just shoving it in a drawer somewhere in my messy, complicated brain. Again, personal growth is so annoying.

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While I do feel better having faced my demons, I can tell it’s still bothering me a bit because of my binge eating and thought patterns. Either that or I’m just so used to used to “crisis mode” that I don’t know how to get out. And that’s OK for a little while but it’s no way to live everyday life.

This week I’m going to try and get back to my intuitive eating skills, because I think they’re so helpful and make me feel better about myself. Last week, I just chucked everything I’ve learned out the window and purposely overeat and/or binged.

I’m also going to do some thinking on where I want this blog to go and what I want people to get out of it, so I can take it to the next level.

All in all, I’m ready to get out of crisis mode and be mindful in everything I do. I know I can do it. It’s never too late to learn how to live your life in a healthy way. And even though it feels like I start all over every week and don’t make strides, I know I’m a million times better than last year. And the year before that. Progress is hard to see sometimes.

I hope y’all have a great week. Stay in the light, my friends.

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