Retrograde Amnesia

As many of you know, I have retrograde amnesia, caused by the many ECT treatments I’ve had to do in order to obtain relief from my depression. For the record, I must have these treatments — my depression is treatment resistant, meaning that most medications can’t help alleviate my symptoms. Not much does except the ECTs, which I started in 2019.

During a treatment, I’m anesthetized and electric currents are sent through electrodes that are placed on my forehead, inducing a seizure. It’s not known exactly how the treatments help; I’ve always looked at it as a hard reset of my stubborn brain.

I would be lying if I said I don’t mind the treatments — I actually hate them, because over time I’ve developed a phobia of the anesthesia. And it’s definitely bothersome that I can’t remember some things. My memory loss goes back years, decades even, and it’s very hard to retain information even now. It’s also pretty embarrassing. I’ve forgotten who some people are, their names and how I know them. And when I say I have amnesia, I’m met with blank stares. And then I have to explain ECTs, which sounds unbelievable if you’re not used to it.

When I do try to recall something, I see only a gray wall where the memory once resided. Things aren’t just fuzzy — they’re just not there most of the time.

This must sound awful, but there is one good thing about my memory loss: the memory loss.

That’s not a typo.

I’ve suffered for decades with major depressive disorder, an anxiety disorder and a personality disorder and it’s unbelievably painful. But, just like I can’t remember who I ran into at the grocery store last week, I also can’t remember the most painful, darkest moments of my depression. I only know about it from my husband’s or best friend’s account of it. Or previous blogs.

Even with the ECT treatments, I still suffer with depression, just on a much lighter scale. I’m glad I can’t remember every time I couldn’t get out of bed or every time the pain was so deep that I wanted to end my life. Because if I sit and dwell on just how bad it was or can be, then I might forget that I do want to live — and live happily.

I don’t know if that makes much sense, but I do know that I (likely) will be struggling with depression and anxiety for the rest of my life. That thought alone makes me sad, and I can see how that thought can make me — and others — lose their faith in life and just put their suffering to an end. Mental illness can be so lonely when you’re in such pain all the time. And people still don’t understand it; the stigma of having a mental disorder is still there, too. So, if you do know someone who struggles, please be more understanding and empathetic. It’s just so lonely.

Even if I have to go under anesthesia and have electric currents sent through my brain every eight weeks, it’s not so bad. Not compared to the reality I was living without the treatments.

I just have to remember to take notes anytime I’m awake.