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retrograde amnesia

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I started a new preventive migraine medication about a week and a half ago (Topamax), and it has not gone smoothly. It’s an older pill, with a lot of side effects. I’ve been on it quite a few times before but have never experienced this many effects.

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First, there’s how carbonated beverages tasting like crap. Fine, who really cares? Then there’s indigestion – another slight annoyance. Then my eye constantly twitching. Also, I can’t sweat when my body temperature rises (say, when I’m doing karate) so I have to take lots of breaks and drink A LOT of water. More annoying. There’s major fatigue and tiredness (I took five naps in one day). Brain fog. Memory loss. My thinking is very slowed. Diarrhea. Oh, and there’s a weird taste in my mouth. Fine.

None of this would matter to me if I hadn’t just have started karate. I started training because I thought it was cool watching my kids. I wanted it for me. I was pumped. I wanted to be physically fit. Then I had to switch to this medicine. I lost my confidence. How was I supposed to tell my instructors — hey I can’t sweat so I have to leave the floor to suck down water every five seconds on top of hey I have retrograde amnesia and also I can’t retain a lot of new information so I need to do private lessons, too. I got issues. And those issues are only mine, I’m sure. But I’ve always hated having them. Some of of exclusion keeping me from being like the others. Keeping me from being healthy — that’s what it is. I’ve always hated hearing, “OMG, you’re so unhealthy. You take too many pills. You’re too young to be this way, etc. “

Cringe.

But I tried to keep my instructors up to date. I tried explaining the best I could. I tried to hang in there until I couldn’t possible go any more. I took my water breaks then got back in there. I wanted to more, yes. But I did enough, and sometimes, that’s what it takes.

That’s what it took yesterday when I earned my first stripe on my white belt. It was not given. It was earned, and I truly feel that way. I have loved getting every bruise on my body. I’ve loved every self-defense move. I’ve loved practicing every round kick (which I’ll continue to do). This is for me. And even though my kids were there (supposed) to be watching me, this was for me. I’m proud of me. But tell you the truth, I could have done without them saying, “Mommy is soooo slow.” or “Mommy is not doing that right.”

I did it the way I was taught and I did it to the best of my abilities. And I could totally kick both their asses, should it come to that. Totally kidding.

Another cool thing is that I see and feel my body changing. I’m getting stronger. I’m trying to condition every day — not to lose weight — but to make my training easier. It’s just going to get harder from here. I like the way it’s changing….how I’m changing. Physically and mentally.

If I can do all that I’m doing plus get a stripe while taking the medication from hell, my depressed, anxious, column-writing, retrograde amnesiac, migraine-having, no-sweating, no-Diet Coke-tasting ass can do anything.

Bring it.

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Fragile…Like a Bomb

by Heather Loeb

Last Friday, I had an ECT, so I was a little, rather a lot, out of it Friday and Saturday morning. I did something I haven’t done in well over a year —  forgot to take my meds. I got out of routine and just plum forgot. ECT can do that to you. 

Yesterday morning, as I struggled to get up and get going, I noticed my mistake and took my pills as I should, but a cloud of guilt and uncertainty followed me. 

I noticed a change in my demeanor almost immediately. I started my period (I missed my birth control as well as my psych meds).  I felt exhausted, scared and sad. I couldn’t believe a simple mistake could shake me this hard. I wanted to crawl in a hole and avoid my responsibilities and not think that this past ECT was a waste of time and energy. 

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It hurts to admit this but my mental health is so fragile — not weak — but fragile like a bomb. I’ll do whatever it takes not to explode. Nobody wants a repeat of 2019, least not me. 

It’s just so frustrating that I do everything I can to maintain my mental health and just three days of missed meds can sink me down so low. It’s baffling to me. And it was an ECT that made me forget!! That’s what drives me crazy. I was doing shock therapy so that I’m the best version of myself, yet it made me forget my meds. For those of you who don’t know, retrograde amnesia is common after a treatment as well as confusion and disorientation.

In therapy this morning I told my therapist what had happened and that I felt overwhelmed because I’ve been trying so hard, but it feels like it doesn’t matter. She said something that struck a chord — that I can’t stand to feel uncomfortable. Not for one minute. And that I always tend to look at the bad in the situation while forgetting the good.

She’s right. Whenever I do feel uncomfortable, I try to stave that feeling off by letting my compulsions take over — overeating, shopping and other self destructive behavior. And I do it all just so I can feel good. But why do I feel the need to feel good and happy all the time? Nobody feels that way all the time, even someone with a “normal” brain.

She also said I needed to delay my gratification, that I’m all about a quick, easy fix, “instant gratification,” but that’s how a child thinks. She’s right about that, too.

Yes, I forgot my meds on accident. Yes, I feel uncomfortable and uncertain, but that doesn’t mean it’s not worth doing. I should continue to take my meds and take care of myself in other ways because taking care of myself only benefits me and my family/friends. The end result will be worth it. Logically, I know it will.

I don’t know if this blog makes any sense or if it has a point, but that’s OK for me today. I’m blogging and reflecting on/dealing with my experiences and feelings in a healthy way.

There is a lot of maintenance and self care I have to keep up with because of my brain’s stupid and ineffective wiring, but instead of getting overwhelmed with it all I have to appreciate everything good in my life and just take everything in baby steps. Maybe that’s what everyone does? I don’t know.

My therapist did say it was important for me to go back next week, lol. So, maybe I’ll learn more then.

Thanks for reading. Stay in the light, my friends.

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